Hello all!
It's been a little while since I posted. Lila is getting stronger each day!! Our therapist swears that Lila is a new kid! She is holding her head up and when on her tummy she pushes up with her arms and legs (!!!!)! Our OT says that Lila looks like she wants to crawl and doesn't think we'll have any problems if Lila keeps doing the things she doing! We have had our NG tube in for about a month and Lila does not seem to be eating better on her own. She still only takes about an ounce and half on her own each feeding. On Tuesday we have an appointment with our GI doctor in St. Louis to discuss a G tube. Hopefully he will hold off on surgery until after Oct 2nd (our wedding date). In other news, if you haven't heard about Inspiration through Art you should really check it out! Formally known as the Littlest Hero Project, this organization provides families of children with serious illnesses or disabilities a special photo session. I sent Lila's application in a while back and we recently got accepted! We have been in contact with our photographer and will have our special session soon!! We are so excited about this awesome experience!! Keep an eye on their website for Lila's story and picture! http://www.littlestheroesproject.org/ That's all for now! We'll keep ya posted!! God bless you all!!
Love,
Alyssa, Daniel, and Lila
No comments:
Post a Comment