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Thursday, February 10, 2011

Overdue update

Hello Friends,
Everything is going pretty good at the Hopper house. Daniel is getting ready to go away to school to complete the first part of the police academy. I am working as a part time aide at Allendale school, in the kindergarten and pre-k classes. Lila is getting stronger : ) although she is not gaining weight very well (due to ng tube issues) she is playing more and making some new sounds! "MMMMMMMMMMMM" and "AAAAAAAAAAAAH" is Lila's new favorite sounds! I am hoping that she will put them together to say mama soon! At the end of this month we are scheduled to see the GI and will be scheduling a G tube surgery. We went to the urologist for a check up and to talk to him about Lila's UTI problems. They ran some tests on Lila's bladder and kidney's since it had been a while since it had been done. The results were pretty discouraging. We have to cath 5x a day due to Lila's bladder having to much pressure and pushing urine back into her kidney's. The doctor also put her on ditrapan to help relieve some pressure. So we started her on a higher dose of the ditrapan and of course Lila had a bad reaction to it so we had to lower the dose quite a bit. Hopefully the increase in cathing and the ditrapan will work and Lila won't have to have surgery on her bladder to decrease pressure. This week there has been a lot of talk about spina bifida in the news!!!! The Today show had a segment on the MOMS study and I was so excited!!! It's so great to have spina bifida being put out there for the public to hear about!!!
So the other day it hit me....Lila is going to turn 1 on the 26th of this month! WOW! What a year! I can't believe my baby is going to be one! Lila has been through so much in her first year and I'm so proud of how well she is doing! She is such a little fighter!!!!!
I'll blog more after Valentines day and Lila's birthday and post some pictures of the birthday girl!!
Alyssa, Daniel, and Lila

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